CALL OF THE VOID

an MS blog

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HELLO

The call of the void, or l'appel du vide in French, is the sudden desire to jump when encountering a high place. Rather than an expression of despondence, most consider the feeling to be an affirmation of life. Living with MS sometimes feels like standing atop a cliff, peering over the edge to the uncharted waters below. I choose to leap. Come join me.

- Erin

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Mile Marker 28: May 24, 2022

I awake this morning to a pink Cleveland sky, my heart aching for Larry and my children. My family drove home yesterday after a visit...

The Journey

Erin Norris

May 24, 20221 min read

Driving Home From Cleveland, a guest post: May 23, 2022

When my mom first reached out and asked me to write this, it was only about an hour after we said our final goodbye and headed back to...

Guest Posts

Rebecca Davidson

May 23, 20223 min read

Ambiguous Loss: May 17, 2022

Yesterday, I posted a photo of me with my rollator. Even the sentence is difficult for me to write, as it contains words that I’ve...

The Journey

Erin Norris

May 17, 20222 min read

Reprieve: May 14, 2022

My central line was removed yesterday with topical anesthetic and without fanfare. I can return now to stomach sleeping, and soon also to...

Stem Cell Transplant

Erin Norris

May 14, 20221 min read

The Opposite of Judgement: May 12, 2022

I am losing my hair. It started falling out in the shower on Wednesday, and I joked to Larry and some friends that the Cleveland Clinic...

Stem Cell Transplant

Erin Norris

May 12, 20222 min read

Serendipity and Stem Cell Collection: May 10, 2022

This past weekend was a quiet lead-up to stem cell collection. Of Neupogen injections with their attendant headaches, nausea that swept...

Stem Cell Transplant

Erin Norris

May 10, 20223 min read

Caregiving: May 7, 2022

I’m up early again after a sleep of the dead, writing from my bed with a blue sky outside my window. When was the last time I awoke with...

The Journey

Erin Norris

May 7, 20222 min read

On Anxiety: May 4, 2022

These days fall into an easy rhythm as everything but the most essential is stripped away. I wake, write a bit, attend my clinic...

The Journey

Erin Norris

May 4, 20222 min read

Wade Lagoon: May 2nd, 2022

Today surprises me with a good day, like the feeling of putting on clean glasses you didn’t even know had become smudged. I am at the...

Stem Cell Transplant

Erin Norris

May 2, 20222 min read

Cytoxan and the Weekend After: Friday April 29th, 2022

Cytoxan day comes and goes in an organized dance of timed medications and hydration, altogether a little anti-climactic despite the many...

Stem Cell Transplant

Erin Norris

Apr 30, 20221 min read

Ascent: April 28, 2022

If every day before today has been about preparation, today begins the first step of the ascent toward transplant with the insertion of a...

Stem Cell Transplant

Erin Norris

Apr 28, 20222 min read

And in other news…I’m on Instagram

I’ve also started an Instagram blog for those small moments that arise through the day, and for those days where it’s just too much to...

Stem Cell Transplant

Erin Norris

Apr 27, 20221 min read

Faking It: April 27th, 2022

My MR report came back yesterday evening, which showed a new lesion in my brain. It actually took me by surprise more than anything....

The Journey

Erin Norris

Apr 27, 20222 min read

This is not a goodbye letter: April 26, 2022

My mom, my step-dad and I drove to Cleveland yesterday after a Saturday spent packing and a Sunday full of goodbyes. Full disclosure: I...

Stem Cell Transplant

Erin Norris

Apr 26, 20222 min read

I’ve always believed that my strength and determination played a role in my recovery from each relapse. That not only did in help me live...

Stem Cell Transplant

Erin Norris

Feb 1, 20222 min read

LET’S CONNECT

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Home: Contact

CALL OF THE VOID

HELLO

Mile Marker 28: May 24, 2022

Driving Home From Cleveland, a guest post: May 23, 2022

Ambiguous Loss: May 17, 2022

Reprieve: May 14, 2022

The Opposite of Judgement: May 12, 2022

Serendipity and Stem Cell Collection: May 10, 2022

Caregiving: May 7, 2022

On Anxiety: May 4, 2022

Wade Lagoon: May 2nd, 2022

Cytoxan and the Weekend After: Friday April 29th, 2022

Ascent: April 28, 2022

And in other news…I’m on Instagram

Faking It: April 27th, 2022

This is not a goodbye letter: April 26, 2022

My HSCT Schedule

Hold Both Tightly: Pre-Transplant Assessment, April 11-12, 2022

Cardiac Window

On Vulnerability: February 13, 2022

About Stem Cell Transplant for MS

If Your Will Is Strong Enough: Pursuing a Stem Cell Transplant

LET’S CONNECT

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